Showing posts with label Wigs. Show all posts
Showing posts with label Wigs. Show all posts

Wednesday, 9 May 2012

How the World of Wigs Has Changed


Deepa had to go through the trauma of losing her hair as a teenager. Now, she's facing it all over again. Deepa writes...

My first 'wig experience' was 29 years ago. I was 14 and had just been diagnosed with leukaemia. An NHS 'wig woman' came to see me in my hospital room. She did not like that my mum, my dad's work colleague and I were being silly trying on all sorts of wigs to help me deal with losing my waist length hair. Thinking that a bald head might be slippy, I asked her ,"what would happen if it is windy" (thinking the wig might blow off). She replied in very cold tones "well you'll just have to be careful won't you". I never did wear the appalling wig that was supplied. Now, so many years later I'm back there again contemplating hair loss as this time I face breast cancer. The person I am seeing couldn't be more different - kind, understanding and accommodating. It feels as if it matters to him that the wig I have should look absolutely real. Things have certainly changed.

I hope that Deepa will keep us updated with her wig story as it unfolds (photos please!)

If you have a story to share, please email it to: chemochic@02.co.uk

Saturday, 5 December 2009

Hair We Go Again

There has been more chat about wigs on the Chemo Chic facebook page. Lulu writes from Edinburgh to let us know about Wig Bank. It's simple. It's genius!

Like so many women, Agnes Lenox found losing her hair the most traumatic aspect of her breast cancer treatment. I know that I felt the same. Another tedious side effects of cancer is that, what with not being able to work and the crazy price of organic food, it leaves one skint. Agnes started Wig Bank as a way to provide affordable wigs for women in exactly our situation. Donated wigs are sanitised, washed and conditioned, then sold for between £10-£20. A snip, I’m sure you’ll agree.

Monday, 19 October 2009

What Facebook is Good For

Here’s a fact, or two. One in nine women will get breast cancer. One in three people will get cancer of some sort. This means that everyone will either suffer from cancer or have a loved one who goes through it. It’s just a part of life these days. And yet there is still an undertone of shame and fear attached to this illness.

I’ve often wondered what facebook is good for. Now I think I’ve figured it out. I started a facebook page called Chemo Chic. The Chemo Chic facebook page does not exist to promote my blog. Rather, I set it up as a place where anyone can go and discuss Chemo Chic stuff: make-up; recipes; wigs; grief; jokes… whatever you like.

There have been some excellent juice recipes posted recently, notably one for green lemonade, delicious, one presumes, with green eggs and ham.

And it’s not just for people who have had cancer, its for families and friends of people who have had cancer. The more we can exchange information and support one another the less shame and fear there will be.

If you’re reading this then please regard yourself as a friend of a person who has had cancer (me). I officially invite you to visit the Chemo Chic facebook page and use it as your own. Just click on the facebook button on the right.

Thursday, 8 October 2009

The Thursday Roundup

I don’t care if it’s cold. It’s sunshine that gives my heart its zing. And today is just the kind of beautiful autumnal day that makes me want to skip to the hospital.

But it is chilly. I really feel for the first time that my head is very cold. Even though I’m wearing a headscarf. It just goes to show how much protection our hair provides.

Standing at the bus stop, tears suddenly spring from my eyes. Lots of tears. But I’m not really crying. It’s an automatic mechanism that kicks in because I’ve got insufficient lashes to protect my eyeballs. I jam on my sunglasses and make a mental note not to leave home without them from now on. Then my nose starts to run freely. This is because all the hairs have fallen out from inside my nostrils. I fish for a crumpled tissue in my handbag. It is all covered in snotty blood. At this point I notice that the girl who was standing next to me at the bus stop has moved away.

I’m trying my best to be Chemo Chic but I have to tell you it’s a challenge sometimes.

I pop in to the Harley Street Clinic. Sister Lottie takes my blood then I skip off down to Marylebone High Street to meet Iris and Flossie at the Providores.

Now, I’ve spent a lot of time singing the praises of this New World Tapas bar. The food is innovative, healthy, interesting and delicious. But one has to order carefully. Some of the dishes really overstep the mark when it comes to the price : quantity ratio.

Iris is a big fan of food fads. Recently she was a Vegan but now she is on the Atkins diet. She chooses her eating plans according to a carefully formulated scientific method: whatever is likely to be most irritating to her nearest and dearest. Not wanting to be outdone I mention that I have just taken delivery of a book called The New Raw Energy by Leslie Kenton. “I’ll give you a week,” says Iris, “I mean it’s all very well when one is trawling the internet eating Green & Blacks at one in the morning. But really, these regimes are just impossible.” Deep in my heart I know she’s right. Iris looks at Flossie. “You should go to the Mayer Clinic in Austria,” she opines, “you’ll definitely lose weight. They give you loads of colonics and no food.” “That sounds awful,” says Flossie. “Yes, but it would be a laff,” whoops Iris, exploding in raucous laughter at the very idea.

Iris orders Tuna Tataki. It turns out to be four tiny pieces of tuna, about an inch-and-a-half square and a quarter of an inch thick, with a few bits of pickled daikon, half a teaspoon of fish roe and some minute cubes of beetroot jelly scattered about the edges. It is exquisite but you’d have to have at least fifteen of them to constitute a meal. At £10.50 a plate it has to be said, they’re taking the piss. Flossie and I do not fare much better. We order Laksa. I envisage a big steaming bowl of noodles in coconut broth piled up with fresh vegetables and seafood. What we get is a small pudding bowl, not full of soup. It’s very tasty but contains only a spoonful of noodles and a few wafer thin slices of squid. It’s a meal for a macrobiotic fairy. £9.80! If you want a proper, big as your head Singapore Laksa, I suggest you try the Makan under the Westway on Portobello Road.

“What was the soup of the day?” asks Flossie, wondering what might have been. “Mushroom and tarragon,” replies the waiter. “Yuk!” exclaims Iris, “I only like beetroot soup.” “I will make you beetroot soup,” I offer. Iris crinkles her nose and looks at me as though I’ve just offered her a bowlful of dog excrement. Now I may not be perfect in every respect – yet, but I do regard myself as something of a goddess when it comes to cooking. “Oh, you are a faithless friend,” I inform her. Iris laughs uproariously. She looks mightily pleased with my assessment of her character.

On the way back to the hospital I pick up my ritual chocolate éclair from Paul. That never disappoints.

Today I’m being tended by Nurse Lindy and Sister Lottie. There’s a whole new gang of cancer sufferers at the hospital. This, I am told, is because everyone is on different cycles. Some come every two or three weeks, some less often. There seems to be one other lady that is here every week, like me. She is persevering with the ice hat, poor love, and seems to be having a pretty miserable time of it.

Two chairs along from me lounges a man. I would judge him to be in his late fifties. His throat is wrapped in a silk cravat. He puffs away on an electric cigarette and blows smoke rings.

Smoking in the Chemo Unit! I am reminded of Marla Singer in Fight Club who always smoked in the cancer support group. What panache. If I weren’t totally bald I would take my hat off to him.


Sister Lottie tells me that she has worked here for more than three years. This is an aeon in nursing careers. It must be a good place to work. She also worked in the NHS. “How does it compare?” I ask. A sad, resigned expression comes across sister Lottie’s face. “It’s really a shame,” she says “Comparing public healthcare in Australia with public healthcare here, it’s much better in Australia.” “That’s very disappointing to hear,” I say, “why do you think that is. They obviously have a lot more money here than they do in Australia.” “Yes, they do,” says Lottie, “but they don’t have the equipment. Everything is in short supply. And they don’t allow treatment with the best drugs. I mean, this weekly Taxol you’re having, you wouldn’t be allowed to have that on the NHS.” This comes as a surprise to me. I have always held the belief that the NHS offers the best treatments and takes care of everybody. Sister Lottie adds that my oncologist and my surgeon are two of the best breast specialists in the UK. Suddenly I feel very privileged and slightly guilty.

Synchronicity is at work. A couple of minutes later Suzy Cleator drops by the Chemo unit. “Did you get my email about the eyelash growing treatments?’ I ask. “Oh, yes,” she replies, “that will be fine. You can go ahead and use them.” I will get onto it pronto.

Gazpacho

The ringing phone wakes me up. It seems to be a given now that I won’t be out of bed much before 10.30 a.m. “Hello?” It’s my friend Camelia, another budding Shaman. She wants to come over and do what sounds like “a Gazpacho” on me, some kind of Shamanic ritual. Or maybe it’s soup? “Fabulous,” I say, “whenever you like.”

I fumble, around trying to get bathed, dressed and to the hospital in time for chemo. I’m so tired I really can’t be bothered to wear wigs anymore.

Friday, 4 September 2009

Things I've Learned - An Occasional Series

I’ve learned a lot of new things in a very short time. Many of them are things that I possibly would have preferred not to know. I will share them with you anyway.

* Don’t pick your nose and eat it. I know your mother probably told you that already but I mean don’t do it at all, even when nobody is looking. It’s full of all the horrible chemo chemicals and tastes disgusting.

* The anti-sickness drugs they give one are very constipating. A strong cup of Laksetee before bed is a big help.

* Once all the hairs in your nose fall out your nose runs all the time. Stock up on pocket packets of Kleenex Balsam tissues. Sainsbury’s do a six-pack for £1.

* Your lips can get very dry. It is wise to keep tubes of lip balm in every handbag, by your bed and in the car.

* Chemo makes everything taste horrible – except for Green & Black’s Organic Dark Mint Chocolate.

* A helmet-head wig is a dead giveaway. Look for a wig that’s a bit messy and has lots of movement in it.

* It is much easier to take small sips of water from one of those squeezy sports bottles than it is to drink from a glass. I usually buy one and refill it a couple of times before I lose it, then buy another one.

* A teaspoon of Manuka honey a day helps to keep mouth ulcers at bay. It is also good for putting on cuts and burns.

* Another sure sign that you’re wearing a wig is that there is no scalp visible at the crown. Wear a hat over your wig to cover up the truth.

* An Hermès scarf always cuts a dash.

* Cancer is not your enemy. Fear is your enemy.

Thursday, 3 September 2009

It Aint Easy Being a Style Icon

Today is chemo day. Before I hit the hospital I pop into the wonderful Providores on Marylebone High Street. It’s just as well to get some really good food on board in case I feel sick later on.

The downstairs café is ram-jammed as usual. I sit at the high bench. There is a blonde woman sitting diagonally opposite. As I read the menu she picks up her coffee and her cutlery and moves to sit directly opposite me. “I’ll move here,” she says “and leave that seat for someone else.” I shoot her a hostile glance. But it turns out she’s not a nutter, just a Kiwi. I soon find out that Martine is an Osteopath in Harley Street. As she observes, one of the nice things about The Providores, apart from the delicious food, is that it’s full of friendly Antipodeans. Martine and I have a lot in common. Well, not that much really. We’re both from the southern hemisphere and we’ve both lived in London for decades. Apart from that, she’s a medical professional and I’m a patient, she’s divorced with three kids and I’m single with no kids, she’s blonde and I’m brunette - today. Anyway, I enjoy chatting with her. When she leaves I tell her that I hope to see her there again. And mean it.

***

“Your haemoglobin is quite low,” says nurse Bess. “What does that mean?” I ask. “It means you’d better eat a lot of red meat and green leafy vegetables, things with iron in them to get your levels up. It might work.” “And what if it doesn’t?” “If your haemoglobin gets any lower you will have to have a blood transfusion.” “Oh.” That shut me up. The possibility of serious chemo side effects suddenly seems real. I tell her that the vein in my forearm, where they regularly put the cannulas, has gone hard and is hurting. “That’s called sclerosis,” she says “it will get better eventually. Meanwhile, we’ll have to find another one.”


It isn’t easy. Nurse Karen seems almost as distressed as I as she taps my arm here and there. At last she coaxes up a vein and inserts the needle. The various drugs start to flow.


I’ve come to Harley Street alone this week. Jamie is on holiday and I think that Iris and Antony have done their fair share of chemo-sitting. The trouble is I’m not very good at asking people to accompany me. Fear of rejection makes it difficult for me to invite friends to dinner or the movies. I can’t imagine anyone gladly volunteering to sit around all afternoon reading OK! and watching Taxol drip into my arm. Just then, May calls on the phone. We make a date for her to come with me to chemo next week. “Oh, that will be fun,” exclaims May. “It depends on your idea of fun” I muse.


Another sobering side-effects moment: as I doze off I overhear Nurse Bess talking with a neighbouring patient. “The doctor is concerned about your liver and kidney functions. We’re going to keep you in for a day or two.” It’s obviously Bess’s day to deliver the bad news to everybody. Next thing a porter appears with a wheelchair and whisks the neighbouring patient away.


I’ve had the anti-sickness drugs and the anti-allergy drugs and the various flushes. It’s time for the main event: the Taxol. Nurse Karen returns with the frozen peas that I’d prepared earlier. “Now, how are we going to do this?” she ponders. Then she ingeniously devises an impromptu pea administering system by binding the bags to my feet with surgical tape. “Did you used to be a model?” asks Karen. “Ah, erm, no” I reply. Karen shouts across to Bess: “She said no but she hesitated” I tell them the truth: that I did give it a go in my youth but I was hopeless, both at modelling and at being treated like a farm animal by vile hairdressers and narcissistic fashion designers. Once, in the past, I expressed regret to my cousin Ben “If only I’d done modelling, I’d be rich” I sighed. “Lily, you’d be dead.” he observed. I love the people who know me better than I know myself.


“I want to get a wig like yours” Karen enthuses “I’ll wear it on Hallowe’en with my catsuit, whip and gloves.” Now there’s a back handed compliment if ever I heard one but Karen doesn’t mean it that way at all. She chats blithely on: “I tried one on the other day. It is such a sexy look...” “I’m proud to be such a fashion icon for you.” I reply, glancing down at my pea-clad toes.


Wind Can Be So Embarrassing

It’s very windy today. I’m worried that my wig is going to blow off. I console myself that if such a hideously embarrassing thing were to happen there is sure to be some thoughtful member of the public standing by with a mobile phone to video the whole event and put it on YouTube. Luckily, I’ve worn a hat over the wig so I can clamp my hand onto the top of the hat and nobody will guess that I’m actually holding my hair on.


Friday, 28 August 2009

Wigs on Parade

The red wig, I’ve decided, is quite wrong in the parting and crown area. It’s got no roots. There’s no scalp showing through, just a thick mat of multicoloured nylon. But it looks great worn with a beanie.

Sheldon and Rosa drop round for tea. I open the door in my auburn tresses and watch their faces like a hawk. I hope that I am able to tell when friends are being too kind or too squeamish to give one their unvarnished assessment. They will often hold back from saying something like “For god’s sake, if you go outside in that ridiculous wig we will be obliged to walk five paces behind you, for your own good you understand. Someone will have to fight a rearguard action against the hordes of children who will follow, jeering in your wake.” So it pays to be able to read people’s faces.

I think that they genuinely like it. Feeling more confident I rip off the red hair and model the bob. This meets with more approval and they agree to go out to the coffee shop with me.
Downstairs, my elderly neighbour Irene is sitting in the sun on her front step. “Oh, don’t you look well?” she pipes up, “And your hair looks lovely.” I lean towards her in a conspiratorial way. “It’s a wig.” I confide.

Further on down Portobello Road, Helen is standing in the doorway of her alternative therapy shop. She calls out “Hey Lily, have you had your hair cut? It looks great.” “It’s a wig” I yell back.

Rosa pulls me to one side. “It kind of defeats the purpose of the exercise," she kindly informs me "if you tell everybody it’s a wig.”

Thursday, 27 August 2009

A Big Day - Part 1

Up early in great excitement. Today is wig day.
I miss the bus. Oh no!

Text to Iris:
Just missed bus. Phone about to die. Please go in and tell them if you get there before me.

Text from Iris:
The bakerloo line is down and the traffic is gridlocked I have been trying to get bus for 30 still on regent st.

Oh no, oh no!!
I feel there is a wig curse upon me.

But that’s just unnecessary pessimism. As I’ve learned, it’s likely to give one cancer or shorten one’s life in a dozen of other ways so I shrug off the thought and, sure enough, another bus comes along.

Raoul’s turns out to be a funny, old-fashioned place with hairdressing stations in the front and a wig-fitting establishment in the back. They do all the wigs for patients at St Mary’s. I’m ushered into a curtained cubicle decorated with textured wallpaper and a blue painted dado rail.

A nice enough but not very interested blonde lady comes in. She does not ask me my name or bother to introduce herself. I guess she fits wigs on cancer patients all day every day and has heard all the stories. I imagine it could be quite a depressing job if you let it get to you. She asks me what my hair used to be like. “Rita Haworth in Gilda” I reply, hopefully. “I don’t think we have any wigs like that” she states. “Well what have you got?” I ask. The look on her face says: “this is going to be a long session...”

First up is a short, spiky number. It is brown with reddish highlights. I have never imagined myself as the head of the Human Resources Department or Admin Manager but now I see that, with the right hairstyle, anything is possible. I hand it back with a shudder.
I realise that wig choosing might be more tricky that I’d thought, especially since I have no idea what I want. Luckily for me, at this point Iris arrives.

The next wig is a winner. It’s a dark brunette, ‘cappucino’, with no highlights, cut in a stylish bob with a blunt fringe, shorter at the back and then angled down to curl into one’s jawline. It’s by René of Paris, Van Nuys, California, made in Thailand.

Next is a long black coiffe – too Morticia Addams. Then a layered short ash-blonde look – too Lady Di. Then a long, yellow blonde style – Iris suggests adding a pair of sunglasses and a kaftan and going out dressed as Cousin It. Finally a copper red wig with highlights in about ten different colours. It’s very long and multi-layered with a flicky fringe. To me it looks like a cross between Suzi Quattro and Farah Fawcett. Iris insists it’s got potential. I try the dark bob again. It’s very French and sexy. Then the red mop. “I don’t think so.” “Wait,” says Iris “look at it from the back.” “Hmmm” say I. Iris enrols the support of the wig lady who holds up the mirror so that I can see it from every angle. “It looks lovely” says the wig lady. “It’s better that your own hair ever was” says Iris. “Hmmm” I say again but not in nearly such a definite way. “I’ll take them both.”

As the voucher-exchange transaction gets under way, I study the care instructions. How to wash your wig (cold water only, use wig shampoo and conditioner). How to dry it (shake and hang upside down overnight). And then WARNING: Avoid exposure to heat such as; blow dryers, curling irons, hot rollers, ovens, barbecue grills... Well I understand that heated styling tools may cause the nylon hair to frizz in an undesirable manner and I am often in need of a reminder not to stick my head in the oven but under what dreadful circumstances, I wonder, would I be desperate enough to barbecue my wig?

Saturday, 15 August 2009

Wigs, at Last!

From: Canalily

Subject: Wigs, at last!

The wig voucher has arrived!

It has been to three different postcodes. Someone kindly opened it and sent it on to me.

Shall we try to go today or on Monday?


From: Iris

Subject: Re: Wigs, at last!

We can go this afternoon if you like call and see if they are open and I'll meet you in a few hours - I just got up, I have a sleep disorder haha


From: Canalily

Subject: Re: Wigs, at last!

Oh bugger. The wig makers are only in on Monday so I have to call then to make an appointment.


Before I can press send on this last one the phone rings... “Well, are we going to get the wig?”

Saturday, 8 August 2009

How to Get a Wig - Part 3

From: Iris

Subject: Wigless

I take it the vouchers never came today?


From: Canalily

Subject: Re: Wigless

No. But no post at all so I'm still hopeful. There have been some

postal strikes around London.


From: Iris

Subject: Re: Wigless

I got a stack of mail actually but some parts of outer london have been effected by the strike


From: Canalily

Subject: Re: Wigless

W10 is NOT outer London


From: Iris

Subject: Re: Wigless

It'll come tomorrow or monday it probably has to sit in a post room for a day before it even leaves the hospital


From: Canalily

Subject: Re: Wigless

Yes there's probably a troll who collects it from surgical supplies in cupboard-under-the-stairs and trudges it through the gothic labyrinth to some post room in the bowels of St Mary's where they wait for a flight of owls to deliver the magic envelopes.

***

The phone is ringing...

“Hello. This is Janine in the surgical appliance orthotics department. I’m sorry that I’m not available to take your call. I’m now out of the office and will return on the 24th of August. If you are a patient who wishes to change an appointment, please telephone 0207 886 5506. Alternatively you may call 0207 886 5197. If you are a ward with a request for a patient to be seen on the ward please send a fax to 1894. If you wish to leave a message, please leave a message with your name, your telephone number and I will get back to you as soon as I come back on the 24th. Thank you very much.”

Wednesday, 5 August 2009

How to Get a Wig - Part 2

Time passes in a delirious, under-water movie kind of way. It’s day three in the bed. The phone is ringing...

“Hello this is Janine from the surgical appliances department at St Mary’s.” I detect a subtle but significant change in Janine’s demeanour. Not exactly kindly but conciliatory may be the word to sum it up. “I’ve sorted everything out. I’m going to send you a voucher for a wig. Take it to the wig shop in Craven Street. You can have whatever colour you like. It won’t be human hair because your hair is going to grow back. I’m sending the voucher by first class post. You might not get it today but you should get it tomorrow.” I’m speechless with joy and gratitude. Thank you, thank you Janine, or Janine’s twin sister or whoever you are. Then I’m gripped by a thought even more wondrous than being allowed to choose a wig in any colour that takes my fancy. What if, oh, what if the wig shop in Craven Street turns out to be the legendary ‘Gilbert’s Hairdressing Academy’, purveyors of ladies’ hairpieces and gentlemen’s toupees, from the TV docu-soap ‘Paddington Green’? I call Iris pronto. She is overjoyed at the possibility. “Get out of bed and get a cab and let’s get down there NOW.” I hang up and sink back into delerium.

Tuesday, 4 August 2009

How to Get a Wig - Part 1

The phone is ringing. Shivers of nausea course through my stomach. My brain pulsates with a force 10 texas-chainsaw-massacre headache, my chest and shoulders heave. and every muscle groans as my eyes adjust to the light.

I’m experiencing this extra sized misery because I caught a cold. On Sunday afternoon my glands came up. By Monday morning I knew things were going to get rough. I went to see the available GP-du-jour. She issued me with prescriptions for penicillin and Tamiflu then sent me packing with instructions to consult my oncologists before taking either of them and “probably best to stay indoors five days”. My oncologist Suzy Cleator is on holiday.

Several hours later I spoke to a very jovial doctor Leslie who advised me not to take either drug. “I think you’re allowed a sore throat” he kindly said. I accepted the genially offered sore throat but then in the night a Battalion of Trolls visited with jackhammers to pound my head, hot coals to wrack my shoulders, sandpaper to scritch my throat and a bucket of green grey phlegmy oysters to coat my lungs. The next morning kindly Dr Leslie suggested that I start in on the penicillin. “If you’re no better tomorrow we’ll get you to come in” So here I am in bed, nearly unconscious and on the verge of being admitted to hospital with a cold. “Welcome to the world of man-flu” says my friend and not-so-helpful neighbour Royston.

This is my first experience of what a compromised immune system really means. And the phone is still ringing...

”Hello, this is Janine from the surgical appliance department at St Mary’s. I have a letter from your GP requesting a wig for you”. I can immediately tell that Janine is not pleased to have received this letter.” You are not a patient at the hospital.” “No” I agree. “Where are you having your chemotherapy?” demands Janine. “At the Harley Street clinic” I warily reply. “Well, we won’t be able to deal with them” states Janine, flatly. “Well that’s okay, I don’t want you to deal with them, I want you to deal with me. I’m the one who needs a wig”, I say trying to sound brightly optimistic. “But you’re not a patient at this hospital.” “No.” Then you should ask the Harley Street clinic for a wig.” Case closed, she implies but quick as a flash I rejoin with “I did -and they suggested that I contact you.” She parries, “Won’t BUPA give you a wig?” “No.” “Oh, so they don’t provide total care” cries Janine in triumph. I crumple, “I suppose not but I’m still entitled to a wig.” “But you’re not a patient at this hospital” “But St Mary’s is my local hospital and I am entitled to a wig and what’s more I need a wig because I hardly have any hair” I add just to give her the full picture in case she thinks that I am some random transvestite chancer trying to build a free wig collection courtesy of the NHS. Janine considers the futility of the situation. “I’m going on holiday for two weeks, I’ll do my best but I don’t see how this can possibly be sorted out before then.”