Tuesday, 22 May 2012

The Future Starts Here



I started writing this blog following my own diagnosis with breast cancer in May 2009. Now, three years later, it's time to move on - and to give something back.

My story has been told, both on this blog and in my book The Elegant Art of Falling Apart [Hachette, Australia; Unbound, UK].

But the Chemo Chic story continues with the launch of The Chemo Chic Project.

The Chemo Chic Project is about living well, now, in this moment. It's about looking great despite our hair falling out. It's about eating delicious and health-giving food. It's about getting through the tears and laughter that each day brings, sharing the load and helping one another. 

Here you’ll find useful information on everything from tying scarves and finding natural and organic make-up, to accessing benefits to meditation techniques and simple, healthy but delicious recipes. There are also links to all of the most helpful and fantastic cancer related websites on our Address Book page.

Chemo Chic is for everyone who has experienced cancer – now or in the past. Chemo Chic is for everyone whose friend, family member or loved one has experienced cancer – now or in the past. In short, Chemo Chic is for everyone.

We want YOUR input. From your tales of wigs to recipes to make-up tips or brushes with crazy cancer cures - your experience will make all the difference to someone else who is yet to face the trauma and triumph of becoming totally Chemo Chic.

Together, we can create a brilliant resource for anyone going through the trauma of cancer. If you have a story that can inspire others, or just some good practical experience, then you have something to offer to The Chemo Chic Project. 

I sincerely thank you for your support, love and attention over the past three years. Please come over and visit The Chemo Chic Project website.


Chemo Chic is not about me, its about sharing what I've learned. Now I am asking you to do the same - Jessica Jones, founder of The Chemo Chic Project.

Wednesday, 9 May 2012

How the World of Wigs Has Changed


Deepa had to go through the trauma of losing her hair as a teenager. Now, she's facing it all over again. Deepa writes...

My first 'wig experience' was 29 years ago. I was 14 and had just been diagnosed with leukaemia. An NHS 'wig woman' came to see me in my hospital room. She did not like that my mum, my dad's work colleague and I were being silly trying on all sorts of wigs to help me deal with losing my waist length hair. Thinking that a bald head might be slippy, I asked her ,"what would happen if it is windy" (thinking the wig might blow off). She replied in very cold tones "well you'll just have to be careful won't you". I never did wear the appalling wig that was supplied. Now, so many years later I'm back there again contemplating hair loss as this time I face breast cancer. The person I am seeing couldn't be more different - kind, understanding and accommodating. It feels as if it matters to him that the wig I have should look absolutely real. Things have certainly changed.

I hope that Deepa will keep us updated with her wig story as it unfolds (photos please!)

If you have a story to share, please email it to: chemochic@02.co.uk

Tuesday, 27 March 2012

What's In Your Cosmetics? Who Knows?

Saturday, 17 March 2012

Box Clever



My recovery programme has involved a truckload of therapies: chemotherapy; radiotherapy; adjuvant therapy; massage therapy; green juice therapy; brown rice therapy; psychotherapy… to name but a few. The therapy that has undoubtedly been the most fun is my patented Product Replacement Therapy. 


PRT* involves replacing all of my toxic cosmetics and beauty products with superior natural alternatives. Good Glamour is a subject that has become as dear to my heart as it is to my wallet. I’ve said it before: natural cosmetics are the new crack!


I do know, from experience, how dizzyingly confusing this whole subject of non-toxic beauty can be. I have kissed numerous organic frogs on the path to finding my Good Glamour ‘princes’. Mistakes are undoubtedly costly.


So I’m really impressed with the people at Amarya who have come up with a cunning plan to get you hooked on natural cosmetics. It’s called the Amarya Beauty Box. So simple: for £10 a month they send you a box containing a wonderful full-sized product plus samples of what’s hot on the market. Try before you buy.


Inside my Beauty Box I found a tube of Dr Hauschka Rose Day Cream (30ml – normal price £23.95) plus a trial size of Caudalíe Gentle Cleanser (30ml) and a sample sachet of John Masters Organics Vitamin C Anti-Aging Face Serum (2ml). Reviews to follow - stay tuned. That’s gotta be £10 worth in anyone’s language!


Amarya don’t insist that you sign up for a year but, if you do, they chuck in some extra freebies!


The Beauty Box is going straight onto Chemo Chic’s list of top pressies to give to a woman who is going through cancer. The prospect of having such a delightful surprise drop through the letter box each month certainly fills me with cheer.


*Don’t forget: Product Replacement Therapy – Live! Tell me which beauty product you can’t live without and I will suggest a fabulous non-toxic alternative that will soon become your new must-have. Join in on facebook, tweet @itsjessyjones with the hashtag #PRT or leave a comment below.

Talkin' About Hair Loss Baby!

Friday, 16 March 2012

Product Replacement Therapy - Live!

Almost three years ago I was diagnosed with breast cancer. I dived head first into researching and informing myself about every possible cure and contributory factor, no matter how insane. 

Once I'd calmed down a bit, I realised that there were about five areas where I could make fundamental changes in my lifestyle that would improve my outcome and, ultimately, my life. These were: 
1. diet
2. exercise
3. spiritual practices
4. getting and giving help
5. possibly the most tricky - beauty products. 

When I began to find out about toxic ingredients in my everyday cosmetics I was deeply confused. In fact, I did not want to know. It all seemed like too much information. I had other things to worry about. Yet the seed had been planted... Gradually, I began to understand what some of the issues are, what the alternatives are, which products actually work and where to get them. As my studies unfolded I became more and more horrified by what I learned. Over time I have replaced every single expensive lotion and potion in my bathroom with a safe - and superior - alternative. And, I promise you I do not miss those old 'friends' at all. 

You too may be concerned about what’s in your beauty products – yet feel overwhelmed at the prospect of digesting all this confusing technical information about ingredients, carcinogens, hormone disruptors and the rest. 

Do not despair – Product Replacement Therapy is here to help (see point 4, above).

Just tell us which beauty product you can’t live without and we will suggest a fabulous non-toxic alternative that will soon become your new must-have.

Leave a comment below or tweet your product to @itsjessyjones with the hashtag #PRT.

Tuesday, 7 February 2012

And More Good News...


My book, The Elegant Art of Falling Apart, is to be published in the UK this Spring. Based on this very blog, the book tells the story of cancer, a bad boyfriend and good friends. Only with a lot less waffle.

If you read the papers or listen to cultural shows on the radio or indulge in any kind of communication with the big wide world beyond facebook, you may be aware that the publishing industry is going through seismic shifts at the moment with old monoliths of the book world crumbling at an alarming rate and new publishing models erupting all over the place.

Unbound is one such innovative venture and I am excited to be a part of it. Here is how it works: go to the Unbound website, there you will see pitches for a gaggle of books by a gamut of interesting authors. Select the book or books that grab you (I do hope that you will select mine), peruse the pitch, watch the video and read the excerpt from the book. Then pledge to the project that inspires you: £10; £20; £100; £10,000,000,000,000,000,000,000… it’s up to you.

In return for your pledge you will not only get the soul satisfaction of supporting a book that has taken two years of my life and a large chunk of my sanity to write, but you will be personally thanked by the publishers who will inscribe your name into the book for posterity. The more you pledge, the greater your rewards: signed hardbacks; bags of sumptuous natural beauty products; signed flower portraits and afternoon tea with the author are on offer (hey – why stop there?) Of course, your ultimate reward will be in heaven.

Please pledge and help to bring The Elegant Art of Falling Apart to British shores.

“More life-affirming (and funny) than any self-help book” – Grazia

Airborne Glamour



So now you know that I am in sometimes-sunny Sydney. Obviously I got here on 
an aeroplane but unless you’ve ever done it yourself you may be unaware of just 
what a long and arduous flight it is from the UK to Australia… even for brats like 
me who insist on spending every penny of their hard earned cash on a business 
class ticket (best deals: Trailfinders). Which was just as well because after 
Royston drove me to the airport at 99 miles and hour with AC/DC’s Highway To 
Hell blasting at five thousand decibels I needed a bit of a lie down.


But Lily is not one to be idle for long. After reading the in-flight safety card, the 
in-flight menu and the in-flight movie programme, I put my time on the twenty-
four hour flight to work on your behalf researching in-flight beauty. 


For several years now our travels have been blighted by airport restrictions on 
what and how much we can take aboard planes in liquid, gel or lotion form. So 
packing the right products for a long flight takes meticulous planning.


After a great deal of deliberation about what I couldn’t live without for a whole 
day I have devised the Chemo Chic In-Flight Beauty Bag:


Products classed as liquids that must be carried in a clear plastic zip-lock bag.
  • Pai Rosehip Bioregenerate facial oil: mix a few drops with the moisturiser for extra richness. Because of limited space I use the moisturiser/ rosehip oil mixture on my hands as well, rather than taking a separate hand cream.
  • Comvita Propolis toothpaste: try to save an almost exhausted tube so you can roll it up and it won’t take up so much space in your zip-lock bag.
Products not classed as liquids.
  • Silk eye mask (the aeroplane ones tend to be plastic backed and scratchy).


Friday, 3 February 2012

Congratulations!

First bit of good news that I've been meaning to tell you about:

To: Canalily
Subject: Congratulations!

Hello,

I’m writing with some exciting news, which is that Chemo Chic has made
it into 4Beauty’s round-up of the best health blogs:


We love your blog and are so pleased to be able to feature it on the
site.

Congrats again and Merry Christmas from the 4Beauty team.    

I am beyond pleased to be featured on their site. Channel Four's 4Beauty isn't just any old beauty website. It is, if you like, the Delia Smith of beauty sites - a gold mine of really useful basic information: make-up videos; fashion tips; how to wear lipstick and guides to creating glamorous hair styles. This is the kind of stuff that fashion magazines just don't tell us, the kind of stuff that I spent years figuring out.

My pick of the day from 4Beauty is How to Apply Mineral Makeup, something I've been meaning to write about but haven't quite found the time to do. I suggest that you read it immediately and save me the bother of writing a similar piece.

Best mineral foundations:




Oh My Goodness Is That The Time Already?

I know! I have abandoned you and I’m sorry. Every day I intend to write a piece 
for Chemo Chic. And every day the beach and the sunshine beckon me away from 
my laptop. By the time I return with my hair full of salt and my brain befuddled 
with bliss it seems that the only realistic course of action is to lie on the couch 
and languidly eat a mango whilst Samantha makes us a nice cup of tea.


I’m in Australia, in case you hadn’t twigged. In a way, I’m having the holiday that I 
missed out on two years ago when Nick did the dirty and our 'dream vacation' all went lurching hideously sideways. I’ve spent time in Tasmania, visiting Mum, Aunty Noni and my cousins Fay and Matilda. The weather was sublime. We swam every day with the giant 
stingrays in the aquamarine water of the bay. Stingrays are gentle souls really, as 
long as you don’t step on them. They hear you coming and just glide ahead like a 
guard of honour. I spent a lot of time standing on Mum’s verandah watching 
them moseying around on the sand, doing their stingray thing. Tasmania is rightly 
famed for its food. We did all the usual being attacked by catching fish from Noni’s boat, collecting mussels and samphire from the rocks and raiding Mum’s garden every evening 
for salads, beans, peas, zucchini, potatoes, corn, kale…







Then it was back to the city to catch up with all my Sydney friends: Mandy and 
Tony, now deep into married life; Lulu; Jimmy and of course Samantha, Lyla, Lily, 
Felix the cat and Lola the one-eyed pug. Living in Watson’s Bay is as bonkers as 
ever. Thank the Lord.


And now so much time has passed by I’m at a loss as to where to begin the catch-
up. So I’m just going to start posting up snippets, going back and forth in time to 
try to fill in some of the details of the past six or seven weeks. 

Wednesday, 7 December 2011

ila Put a Spell on You





Review by Jessica Jones


I am under the spell of ila. To say that ila is a range of utterly sumptuous home spa 
products would be completely underselling the whole thing. 


From their website...


“...by embracing the utmost ethical integrity that we can harness the earth’s highest natural 
vibrations: vibrations with the power to reach beyond the physical to nourish emotional and spiritual well-being too.”


Well - I’ve gotta get me some of that. 


Spiritual well-being aside, there’s nothing like a bit of luxury packaging to make me feel special. I savour the jewel-coloured boxes for a moment before ripping them open to 
get at the heavy, white glass jars nestled inside their golden cardboard linings. Following 
instructions from Denise Leicester, ila’s founder, I dump a handful of Himalayan bath salts 
with Damascena Rose Otto and Sandalwood into the tub and turn on the hot tap. Whilst 
the bathroom is steaming up I fold a fresh white towel, roll up some face flannels and place 
them neatly on the rim of the bath. Just like they do it in a real spa. Next I switch off the 
light and spark up my tuberose and rose candle. By now my tiny bathroom could be 
mistaken for  Sheherazade’s chamber. The bath is brimming so I top it off with a scattering 
of rose petals (not organic) and leave those to steep whilst I strip and rub my pale body 
down with Blissful Body Scrub - a heavenly concoction of Himalayan Salt Crystal, 
Damascena Rose Otto, Jasmine and Organic Rosehip seed oil. Then it’s simply a matter 
of sliding into the hot, scented water and lying there is a state of bliss and emotional 
nourishment for twenty minutes with a warm flannel over my eyes. Oh damn - I forgot the 
whale music. No matter, I can sing “Frosty the Snowman” and other hits from “The Phil 
Spector Christmas Collection” that Sheldon gave me last year. I mean, who is going to 
stop me?


So here is my first resolution for 2012: I’m going to be this good to myself at least once a 
week. I grant you permission to do the same.


And if you’re wondering what to buy as a Christmas treat for yourself or for a friend who is 
unwell, ponder no more.


ila Essence of Peace gift box, £74
ila Tuberose and Rose candle for inner peace, £45.94


Body Scrub for a Blissful Experience ingredients: Himalayan Salt Crystals (Sodium Chloride), Wild-Grown Argan Oil (Argania Spinosa Kernel), Almond (Prunus Amygdalus Dulcis), Rosehip Seed Oil (Rosa Canina Fruit), Sandalwood (Santalum Spicatum), Rose Otto Oil (Rosa Damascena Flower Oil), Jasmine (Jasminium Officinale), Patchouli (Pogostemon Cablin), Vitamin E Oil (Tocopherol Extract), Wild Poppy Essence, Naturally Occurring Citronellol, Geraniol.


Bath Salts for Inner Peace ingredients: Himalayan Salt Crystals (Sodium Chloride), Essential Oil Blend: Rose Otto Oil (Rosa Damascena Flower Oil), Sandalwood Oil (Santalum Spicatum), Jasmine Oil (Jasminium Officinale), Naturally Occurring Citronellol, Geraniol.


Tuberose and Rose Candle for Inner Peace ingredients: Beeswax, Jojoba Oil, Eco-soya, Essential Oils of Rose Absolut, Rose Geranium, Tuberose and Vetivert


Monday, 28 November 2011

Head BAM

Hooray! Our first contribution to the Chemo Chic Project.

BAM Bamboo Beanie - review by Sue Mercer


Since losing my hair I have tried a lot of different headwear. At first I wore 
scarves and practiced with tying different styles but I always had the nagging 
fear that the scarf would come undone and I would be unawarely walking 
around with a half-exposed bald head - not a good look. After a while I learned 
to be bald and proud and had no difficulty in walking around with a bare head  
- especially in the summer when the warmth of the sun felt particularly 
sensuous and healing. However there remained a fear of being 'caught out' 
unsuccessfully trying to conceal something deemed socially unacceptable. I 
likened it to a time in Bangladesh when I had gone out wearing a very 
modest, long pashmina, wrapped around me like a skirt, only to catch it on a 
wing mirror and end up standing in the crowded street desperately trying to 
conceal my legs amidst assorted children, cattle, amputee bands and 
rickshaw drivers whilst my teenage son accused me of turning it into a circus. 
However, I digress ... 


I tried a couple of beanie hats that were ok, in that they stayed on my head, 
but I always thought that they made me look vaguely like a channel swimmer 
and I am someone who can swim without getting her hair wet anyway. 
Ordinary hats were not suitable at all; my head had strangely shrunk since 
losing my hair, so the hats tended to fall down over my eyes. 


Now the BAM is cool! It's more generous than a regular beanie. It looks stylish 
and I can dress it up with a fancy pin. I would actually go so far as to say it is 
elegant - certainly not a word I would use to describe a regular beanie. Mine is 
a lovely grey colour and well made. It is double layered and stretchy. I can pull 
it down over my eyebrows if they are looking particularly werewolfy (no-one 
ever told me that when your eyebrows grow back they can grow a little curly 
and in my case with white stripes) and it still looks good. It's generous enough 
to be able to turn up the brim or pull up at a jaunty angle that I like to think 
looks very 1930s movie star. 


The hat is made in Turkey of 68% bamboo, 28% cotton and a bit of stretchy 
elastane. Bamboo is a natural fibre that does not damage the environment 
and most importantly does not add any toxic chemicals to my delicate head. It 
is very soft and warm and does not make my head feel stifled. 


Mine is a lovely grey colour. I am very pleased with my BAM beanie and will 
be keeping it to wear even when my hair comes back. 


Sue Mercer was diagnosed with acute myeloid leukaemia in December 2010.  She underwent three rounds of chemotherapy and then went on a 3 week healing retreat at Hippocrates Health Institute, Florida before having a bone marrow transplant on July 1st 2011.  She is now recovering well.

Friday, 18 November 2011

The Chemo Chic Project is Born


With the publication of my memoir The Elegant Art of Falling Apart, I feel that my personal Chemo Chic story has been told. 
It is time for Chemo Chic to take a new direction.
When I was diagnosed there was so much I did not know. I still don't know a great deal - but everything that I have learned along the way I have shared on this blog. And to me, that is the point: Chemo Chic is not about me, its about sharing what I've learned. 
Now I am asking you to do the same. 
The Chemo Chic Project has commenced and has already recruited two fantastic experts to the panel: fitness angel Melanie Metcalfe and natural beauty guru Imelda Burke. More will be joining soon. Our vision is to recreate Chemo Chic as a brilliant resource for anyone going through the trauma of cancer. If you feel you have a story that can inspire others, or just some good practical advice, then we would love your contribution.
We are looking for guest blog posts which are:
  • Useful
  • Practical
  • Positive
  • Well written
  • Well researched
You may be going through cancer yourself. You may be a partner, friend or family member of someone who is going through it. You may have had cancer in the past. You may have unique insight as a doctor, nurse, nutritionist, therapist, chef or hairdresser. Your story might be about a day in your life; any aspect of your cancer journey or your experience as a partner, friend or family member of someone going through cancer. You could include photos, illustrations, videos or links. No story is too small but it has to be yours. 
Chemo Chic is about living well in the face of cancer. We are particularly interested in posts that cover the following areas:
  • Recipes and food 
  • Natural beauty and cosmetics
  • Wigs and hair tips and stories
  • Clothing, hats and scarves
  • Fitness and exercise
  • Complementary therapies
  • Relationships with partners, family and friends
What we are not looking for:
  • Advice giving (but do relate your own experiences)
  • Medical advice (unless you have specific expertise in this field)
  • Miracle cures (unless you have genuinely experienced one yourself)
Send your proposals and submissions to chemochic@o2.co.uk. Please share this with anyone who you know who you think has a great story to tell or a useful tip to share.

Many thanks and looking forward to reading your posts. Now get writing!
Jessica Jones
‘Canalily’

Monday, 24 October 2011

Attention, New Yorkers

I received this from the photographer David Jay. If you're in New York this week I urge you to go along. The Scar Project is a very moving and thoughtful body of work.



Reminder: Four days left-The SCAR Project Opening Night Gala, October 28th. Exhibition runs through November 6th, 2011. Please join us in celebrating this extraordinary project. Tickets are available online at EventBrite for our Opening Night Gala or a Gallery Walk with photographer David Jay, on October 30th and November 5th. General admission tickets are also available for the entire 10 days and evenings of the exhibition. We look forward to seeing you at 201 Mulberry St. NY, NY.
For more information on The SCAR Project, please visit our website at www.thescarproject.org or our Facebook page.

Saturday, 15 October 2011

Look, a Book

Bang a gong! Play that funky music white boy! Get down with the trumpets! Hit me with your rhythm stick!

Why the big hullabaloo? Jessica Jones' eagerly awaited book The Elegant Art of Falling Apart is published this week by Hachette Australia.


The book tells the touching tale of a woman who was diagnosed with breast cancer and how she got through it by writing a mad blog about cancer fashion and beauty tips; with a lot of help from her wonderfully eccentric friends and with the love of her handsome Aussie boyfriend. Only... uh-oh, it turns out that he didn't love her after all and just as soon as she finished the chemo and radiotherapy, he dumped her...

Hang on a minute. Clearly this impostor has gone and rocked up at a publishing house with a story she's lifted directly from Chemo Chic. Can you credit the bare-faced impertinence of the woman!

Plagiarism aside, it looks like a pretty good read. Celebrated Australian actress Susie Porter says this:

'Jess has the amazing ability to make you feel that you are with her, every step of the way. I laughed out loud, I cried and I couldn't put The Elegant Art of Falling Apart down, couldn't stop reading until I'd completed this extraordinary journey with her.'

For those of you with Attention Deficit Disorder, here are some one-line reviews from Twitter:

'Never read such a heartrendingly funny brave book. Title sums it up perfectly.'

'An amazing inspirational woman's experience with cancer and a wanker.'

Please feel free to add your own one-line review on The Elegant Art of Falling Apart facebook page.



Wednesday, 12 October 2011

The Hair-Story Continues...

On October 15th, 2009, two years ago, I had my final (I hope) chemotherapy session.


Bald as a billiard ball I progressed to five weeks of radiotherapy and, during that time, small fluffy strands of hair started to appear, like peach fuzz.


By January 2010 my heart was broken (that's a whole other story) but my hair was a centimetre long.

In March that year my friend Deidre trimmed off the ends. Loath as I was to part with the tiniest wisp of my new hair Nurse Lottie had insisted that this must be done because the first growth would be full of chemo chemicals and generally 'rubbish'.


Since then I have not had cut it at all. Not once. Now that all must change. It's time for Lily to bite the bullet and venture forth to the hairdresser. Much as I'm looking forward to hanging out with the lovely Kell Skott and his equally lovely wife Jacqui, I simply can't bear to sacrifice my hard won hair in vain. No! If it's going to be cut, it's going to be cut for a cause.


The Haven is a wonderful sanctuary for anyone with breast cancer. They helped and cared for me during my difficult year of breast cancer. Please sponsor my BIG BIANNUAL HAIRCUT by donating to the Haven. 


Click here to donate via Virgin Giving.

For illustrative purposes only - actual result may differ

Sunday, 2 October 2011

Pinktober!

 
October sweeps in on a wave of insanely glorious sunshine and a tsunami of bonkers pink ribbon promotions.

If you were reading Chemo Chic this time last year, you will know that I am all in favour of raising money for breast cancer charities and being generally aware of the signs of BC to look out for. But some of the ways that companies latch onto this particular good cause to push their products is suspect, bordering on outright exploitative.

First out of the traps is Hard Rock Hotel and Casino, Tampa, Florida. So if you fancy gorging on hamburgers whilst gambling away your life savings for the cause, grab a cab to Heathrow now! They are running a "limited availability Pink Sheets guest room promotion including complimentary commemorative Hard Rock pin". Should you not feel pinked out enough you may wish to pop down to the gift shop to pick up a few pink bath robes, ‘collectible’ Hard Rock Pinktober charm bracelets, t-shirts, leather vests, sleepwear, travel mugs, bandanas, and pink-hued guitar-embossed, bedding. Between 15% and 25% of your cash will be donated to breast cancer research, depending on what you buy.


Alternatively you could stay sitting in front of your computer, take a few minutes to click on a link, fill in your card details and donate directly to your favourite breast cancer charity – which will receive 100% of the money. Then snuggle up on the sofa with a pink cushion and a cup of green tea to watch Downton Abbey, as I will be doing.

Far be it from Lily to judge. If you want to support breast cancer charities by filling your home with cheap tat, please be my guest. There is no harm in it. But I draw the line when companies start pushing pink ribbon products that contain ingredients known or highly suspected to promote breast cancer. This year’s top contenders for the Pink Hypocrisy award include American breast cancer charity Susan G. Komen for the Cure for their fundraising perfume ‘Promise Me’. According to Breast Cancer Action’s ‘Think Before You Pink’ campaign the pink-ribboned scent contains: ‘Galaxolide - a synthetic musk that works as a hormone disruptor, and Toluene, a potent neurotoxicant.’ Honest injun!

‘Promise Me’ is joined by another of the usual suspects: Estée Lauder’s Elizabeth Hurley pink ribbon collection. I will eat one of those BHT, Octinoxate, Alumina and synthetic fragrance containing little pink sticks if anyone can tell me one constructive thing that our Liz has done to advance the cause of breast cancer prevention, other than show up at parties sponsored by Estée Lauder.